Tag Archive | caregiving

How To Get Your Parent to Move (or, Learn from the Universe)

People my age (44, thanks for asking) commonly look for ways to have their parents do something that they are simply not wired to do.  Move out of their home of 30+ years.  Hand over the keys to the checkbook.  Give up driving.  Eat less salt.  Luckily, the Sandwiched Man has been through many of these and has the magic antidote to get your elderly parent to do all of the above, and then thank you for the privilege.

The answer is: it’s not possible.

Here’s what I mean.  My father lived in his split-level in Lawrenceville for more than 2 years after my mother died.  He drove to the supermarket, to CVS, to the library, occasionally to the train station to pick me up, and even up to Boston.  He was determined to mow his own lawn, manage his own medication, pay his own bills and deal with the house’s aches and pains on his own.  At first, he let me assume my mother’s prior role managing the checkbook.  This lasted until my brother and I decided that keeping the house clean was a priority worth spending money on occasionally.  Then he suddenly decided to change his checking account online password, and move all of his assets out of Fidelity (where I had parked them) and instead invest them with a broker at Wells Fargo.  He also decided that not speaking to me for 2 months would be a good idea.

Now, of course, I manage almost all of this and he moved to be near me.  How did this happen?

Gradually.

First, the money.  He noticed that his investment account didn’t pay enough interest.  He’d had experience with my approach and results (index funds, boring stuff) and realized perhaps that he’d made a mistake.  I suggested that if he wanted to move things back, I’d be happy to help, but no pressure.  So about 6 months later, he reversed course and let me back in.  He even told me his banking online password.

Next, moving.  It is amazing to me that he lasted as long in that house as he did, because the margin for error was zero.  Once he got sick, he absolutely could not manage being there anymore.  But I started the conversation way before then, and not by asking for a date by which he was going to move.  Instead, I asked him that when he moved, where would he like to go?  Massachusetts (me) or California (my brother)?  We needed to make plans, I told him.  Then he told me that he was not moving.  “I know,” I said.  “But someday you probably will.  Those are just the odds.  Think about where you’d rather be.”  Using that line of conversation is some of the best advice I ever got.

Six months later, on a drive back from Legal Seafoods during one of his aforementioned visits to Boston, he again mentioned that he did not want to move right away, and that things were fine.  “Sure,” I replied.  “Until you get sick with something that puts you in the hospital.  Then we have a whole world of problems because there’s no one near you, and neither Rob nor I can move down there.”  The next day at the kitchen table he told me that after thinking about it, he’d want to come to Boston, and probably within a year.  I paused.  “OK.  No rush.”

Then he got sick.  And immediately, he declared that it was time to sell the house and move.  It was definitely not ideal, but realistically, it was the best we could have done.  He simply was not going to budge earlier.

Preserving his dignity is paramount for my brother and me, and not just because some day we hope our children remember our example and do the same for us.  If he’s not bought in, it is simply not going to work, whatever it is.  If he doesn’t have the will to make it work, it’s not going to work.

(Parenthetically, we didn’t just how little margin for error he had until he lived in the house for 2 weeks between my breaking him out of rehab and my brother moving him up to Boston.  The roof was falling apart.  The air conditioning had been broken all summer and, it turns out, the summer before.  He could no longer open childproof pill bottles or punch his lifesaving antibiotics through the plastic.  Every time he scaled the stairs, we risked disaster.  Then once we moved all of the furniture, the extent of the carpet’s mildew infestation became evident.  It was a horror show.)

My point is that in the end he moved “suddenly”, but the buildup took time.  I had to lay a foundation.  That takes time, patience, persistence, a sense of humor, and a respect for the dignity of the proud human being you are dealing with and whose pride is going to come in handy for you someday.  Trust me on this.

Think of it this way:  most meteors cross half the universe before they shoot across the sky for a few seconds.  Your job as a caregiver (and a parent, really) is to keep it moving across the universe so that you are ready for when it hits the atmosphere.

Irony Alert!

I organized a great support group for some fellow members of my Temple also taking care of elderly parents.  But… then I couldn’t attend because I actually was in the hospital with my father.

He has some severe hip pain, and the good news is that nothing is broken.  Probably a pulled muscle.  We were trying to figure out where he was going to end up tonight (the hospital, it turned out) and going forward (hopefully back in his same community, which part is TBD).

And in true sandwich generation fashion, my kids’ swim team annual postseason ‘banquet’ was also tonight.

So, now I am really glad I enjoyed the smooth days when I did.  And to my fellow support group members who were there tonight… I was thinking about you.  Ironic, right?

Classical Music, and the Reason and Will to Live

Is “caregivee” a word?  Well, if not, it should be!

As I’ve mentioned before, my father presents a classical music demonstration in his community every other week.  He does so by creating a YouTube playlist of performances around a certain theme, then writing up a short blurb that is edited by my brother or me and printed/copied by the community’s Activities Director (the soon to be world-famous Andrea), and then streaming them over wireless to an AppleTV box attached to the flat screen in the common activities room.  Very 18th century meets 21st century.

Anyway, this is his favorite project and the thing that he lives for.  If you are a caregiver, you know how important it is that your loved one have an organizing principle in their lives beyond taking medication and watching old movies.  This is his.

The “reason to live” is the slightly younger twin brother of the “will to live”, which is something we all pray for regularly, whether consciously or not.  They are inseparable.  In Judaism, I believe that this is what “Refuah Shlema” refers to.

Below is an excerpt of my dad’s latest presentation, done Wednesday.  It is his 2nd pass at Mozart, whose Eine Kleine Nachtmusik was the soundtrack to many of my childhood family road trips in my dad’s faux-wood station wagon(s).  If you don’t like classical music, enjoy instead the depth of the curating effort of a man armed with an iPad, a YouTube search bar, and a reason to live.

The Classical Music Hour

with

Andrea and Steve

Wednesday, March 5, 2 PM

MOZART REVISITED

WOLFGANG AMADEUS MOZART is perhaps the most popular classical music composer. He produced over 600 works, including 6 major operas, 41 symphonies, 28 piano and 5 violin concertos, many of them acknowledged as masterpieces in their categories.

Although a few samples of his work were introduced during the past classical music hours, a more detailed, more comprehensive examination seems to be justified.

The next 45 minutes, you will watch a great variety of Mozart’s masterworks, such as:

OVERTURE of the ABDUCTION FROM THE SERAGLIO, Vienna Symphony Orch. – Fabio Luisi

http://www.youtube.com/watch?v=GrFbiw77_90

MADAMINA Arie from DON GIOVANNI, sang by F. Furlanetto

http://www.youtube.com/watch?v=INF9r5jju0A

CHAMPAGNE Arie from DON GIOVANNI, performed by I. Kovacs

http://www.youtube.com/watch?v=wW_L6Fo7Fjk

THE QUEEN OF THE NIGHT Arie from the MAGIC FLUTE performed by E. Miklosa

http://www.youtube.com/watch?v=H_xfC9RXicU

OZMIN’S Arie, THE ABDUCTION FROM THE SERAGLIO, sang  by  Jozsef Gregor

http://www.youtube.com/watch?v=rvDZ9Ikvc7U

THE FAMOUS PIANO PIECE, TURKISH MARCH, played by pianist R. Brautigam

http://www.youtube.com/watch?v=HMjQygwPI1c

PIANO CONCERTO #20 – Romanze, played and conducted by Mitsuko Uchida

http://www.youtube.com/watch?v=qhNITXBguSs

VIOLIN CONCERTO #4, performed by Julia Fischer

http://www.youtube.com/watch?v=9Hqyxy9u4W8

SYMPHONY #40, first movement, Berlin Philharmonic, conducted  by T. Pinnock

http://www.youtube.com/watch?v=pIsMmuf9Q3Y

SYMPHONY #41 “JUPITER” – Chamber Orchestra of Europe, conducted by T. Harmoncourt

http://www.youtube.com/watch?v=zK5295yEQMQ

TURKISH FINALE from the ABDUCTION FROM THE SERAGLIO

http://www.youtube.com/watch?v=Tw84smtNE1Q

Caregiving Success: It’s Not Entirely Luck

I consider myself pretty self-aware; given how much introspection it takes to keep myself on the rails, I better be.  Every once in a while, I allow myself to take some credit for my father’s improved situation and my kids turning into warm, emphathic, smart and kind people (credit shared with my brother and wife respectively, of course).  So many things are out of our control in both situations that when a chapter ends well, you take a small victory lap even if you know already that the book itself is going to be a tragedy.

Brief side note: I have a good friend down the street who convinced me to buy an outdoor gas grill that I could connect directly to the line in my house.  Best thing I’ve bought in ages.  His logic was simple: as a father of daughters, you control so little in life that you need something that you actually do control.

Anyway, I am also keenly aware that much success in life and caregiving stems from luck.

Yesterday, Today and Tomorrow Sandwiched Man

My family and I were away for February vacation for a whole week.  For many people, trips away provide a welcome opportunity to pause, change life’s rhythm (usually to slow it down), and put down the metaphorical glass of water.  Meaning, even a not-very-heavy glass of water eventually is a back-breaker if you have to carry it forever.  

Being a parent and a caregiver simultaneously increases the degree of difficulty on putting down the glass of water, but it can be done.  For a short time.  And not for a week.  

Once you get up to a week, you start handing problems to the tomorrow version of yourself.  Fans of the show Seinfeld might remember the episode where Seinfeld talks about “Tomorrow Jerry”.  I use this construct a lot; at some point, you have to delegate your problems today to the tomorrow version of yourself.  (Trust me, that sentence works.)  Most days, I thank Yesterday Peter for some of his good choices or empathize with his prior plights enough to give him a pass for things he handed to me handle today.

A week with an elderly parent means that if you help parcel out medication, as I do, your parent is going to run out by the time you get back.  This time I prepped a few days extra, but that ran out on Sunday.  So after driving back from New Hampshire, I had a date in Framingham with my father’s prescription bottles.  Today Peter was on the case.  But then he got tired enough that the snowy, windy weather encouraged him to have hot chocolate instead and delegate the pill distribution to Tomorrow Peter.

Then Tomorrow Peter turned into Today Peter with a medication disbursement deadline.  Today Peter was also faced with the just-announced merger of his company where he was among the few survivors, as well as prep for an upcoming Board presentation on the somewhat radical financing structure that he was recommending for his Temple.  And this is how Today Peter found himself on multiple conference calls in his car, while driving to help his father in Framingham, while cursing Yesterday Peter and his poor planning.  I pulled into a liquor store parking lot just off Route 9 for a few of these.  At least I was able to stop off to pick up my father’s Vermouth and replenish the house beer supply for when I visit.

Today Peter arrived at his father’s apartment around 4pm with only a few minutes to take care of parceling out pills before the next wave of conference calls.  My father sensed the time pressure, sensed my anxiety and knew that my time was limited.  So he did the logical thing, which is to recommend that I have a drink with him.  

At first I turned him down.  Then I realized that I was crazy to turn him down.  So we had a quick shot together.  It was fantastic.

Now that I am looking back on how Yesterday Peter performed in that situation, I want to thank him.  It became a great memory and a nice reminder that my father isn’t just someone who I am caring for — he is my father and sometimes knows what I need.  I’m sure Tomorrow Peter will agree.

Sandwich Generation Scourge #259: Relatives Speaking Nonsense

If you are a caregiver, you have a person like this in your life too.  She means well and is a good person.  Probably loves her kids and has many redeeming qualities.  Connected to you by blood and the memory of many family events, some of which you even recall as not completely awkward and uncomfortable.  Someone who has come through for you in the past.

But not always – because this person can be counted on occasionally to give your loved one spectacularly bad advice.

In my case, this advice was related to taking medication.  Because apparently doctors are all trying to make money by prescribing antibiotics like Dificid, which is the pill that currently separates my father from the runaway symptoms of the stomach bacterial infection C Diff.  Also, once the symptoms are gone, you don’t need to take more pills.  After all, if I have a headache, and I take aspirin, and the headache goes away, I don’t take more aspirin, right?  I mean, clearly doctors are just trying to make money.  Everyone knows that.

My father relayed this advice that he’d heard to me and I went ballistic.  Sometimes I do this.  Generally my style of persuasion is finesse, not brute force.  As a sandwich generation person, I try not to go to the yelling mode with either my father or my kids, but sometimes there is no choice.  Plus, I was angry.  My father has a penchant for making his own medical decisions, most of which consist of trying to second-guess which prescriptions he should take that week.  I have worked really, really hard to talk him out of this habit and put the medication process on auto-pilot.  It has worked.  This is better for everyone.  And then now this

So I somewhat (but only somewhat) more gently pointed out that this infection had come back many times, that he should stick with the plan, and this relative should stick with what she really knows a lot about, whatever that is.  Etc.  Then he said, “Peterkem (Hungarian for ‘my Peter’, sort of a term of endearment), of course I am listening to you.”  Almost as if to say, “I know that this advice makes no sense.  I am not a dummy.”

Problem solved.  Until the next spectacularly bad advice floats over the transom. 

Sandwich Generation: the symptom is the cure

Here is a screen shot my father took from a Skype session I had with him last night.

Image

Sophie and Daddy use the magic Skype machine

You can see my daughter Sophie in the shot – she was talking to him (this was about an hour after my last post about his C-Diff returning and feeling a distinct sense of whatever the opposite of the relief is).   You can see in the picture how happy they both are about it and the connection that’s formed.

Sometimes you can employ one side of the sandwich, so to speak, to help you with the other.  That is, the symptom is also the cure.

You Know the Drill: Today’s Sandwich Schedule

Just an average Sunday schedule for the Sandwich Generation — you’ve had these too.  It looks like this:

8:45 – 10am: watch some Olympics with the kids, but mostly make sure that they are prepped for today’s swim meet and have done their Hebrew School homework.  Also had to jam in a few work emails.

10:30am-11am: review Hebrew School homework, figure out what on earth they are going to have for lunch, and negotiate over who is driving them where and when

11:30am (ish) – 2:30pm (ish): go over to my father’s apartment.  We were supposed to watch a movie, have lunch and go through photo albums.  My main agenda item is to see what I need to need to do now that his C-Diff infection clearly is back.  This leaves a mess (enough said there).  So, although he tells me that it’s not too bad and the apartment-facing camera appears to confirm that, I definitely have to check, especially the bed.  Luckliy I have spare sets of everything now (not the case when he first moved up here).  Which reminds me that we’ll need to get antiobiotics into him before I head away on vacation next Friday, preferably by Wednesday so that I can leave knowing that they worked well enough to regain control.  Also that reminds me that his other prescriptions need to be refilled.  And that we will need to make an appointment at Mass General to get the fecal transplant procedure set up.

2:30pm (ish) – 6:30pm (ish): Kids’ swim meet.

After 6:30pm: home.  Need to figure out dinner, as well as lunch setup for the week.

At least it’s a day where I can sort of plan ahead.  Glass half full.